Lennon's Story - Page 2

After Lennon's last brain scan in april 2008 they noticed some brain changes.

18th September +8 Lennon just really fed up now and misses all his caring family back home. His hair is thin but he hasn’t lost it all. He’s not happy with the itching due to GVHD so they have given him a stronger cream again. Dr Vora has told us we can go and stay at Pact House. We are getting used to giving him all of his medicines now, we will need to know this for when we go home.

19th to 23rd September We are still at pact house, going for our daily appointments at the hospital. Dr Vora is very happy with him and said we can go home as the GVHD has cleared up with steriod cream now.

24th september We are going home today. We just can’t believe it. Lennons so excited.

All Kids

Lennons been an inspiration to his Mummy & Daddy, brother, sisters and all of his family. He dealt with each day as it came and always had a smile on his face. He kept us all going through this massive ordeal.

We had lots of help from all our family and we were visited at the hospital all the time by them.

Big Thanks to Dr Vora and Staff , Dr Sharrard, all the amazing nurses and staff at Sheffield Childrens Hospital on ward M3, Beryl at (Pact house) Liz and Clic Sargent.

We met some wonderful people while we were on ward M3, especially Fionas family who were in the isolation room next to us. They were so friendly and such a close knit family like our family. Its just nice to speak to families with ther own circumstances and know your not alone.

Lennon’s dad and the whole family are Leeds fans, the Grimsby supporters club have been very supportive with the family and have launched an appeal to raise money for Lennon to be a mascot when he is out of isolation.




Lennon

October 8th - This is just a little up date on Lennon, at the moment Lennon is still doing well,eating lot’s, and he as got such a hearty laugh!! it’s such a joy to see him looking good!! Well he as a big day on Thursday this week ,as he is having a bone-marrow test [he will taken to theater that day and put to sleep] it is to see if the bone-marrow is grafting, we are very pleased with Lennon’s progress but we still have to take one day at a time.

October 14th - Lennon woke up this morning feeling very tried and sleepy. Not in a very good mood! He went to Sheffield children’s hospital today for one of his check up’s with dr.Vora.

Lennon had his bloods taken today and all his other observations done. Well the reason Lennon is feeling listless is the medication Lennon is on. It is getting cut down and it is the large amount of steroid’s Lennon as been on, and all what Lennons little body as been through it is to be expected, this is how he is coping with it!

Well we have had some good news today Lennon’s bone-marrow grafting results came back, and it is working well over 95% , and that is what the Dr wanted so up to press thing’s are looking good. He go’s back in December to see if it is still grafting. but like we keep being told we still can only take one day at a time, so you can imagine we are so pleased! He goes weekly for his bloods to be taken and his normal check up with Dr.Vora and he still cannot mix with large amounts of people. He is slightly anemic.

Joe


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