Our Journey with ALD

My Son Joe

"I love you more than the moon and the stars in the sky, and the planets in space."

— from Mummy

This is my story of the eight months that changed everything — written so that Joe is never forgotten, and so no other family walking this path has to feel alone.

Joe
About Joe

A happy, bubbly boy loved by everyone who met him

I've written what happened to me and my little boy when he was diagnosed with ALD. It was the worst eight months of my life, but I wanted to share our experience with everybody.

The doctors told me he'd had it since he was two, and that his was the worst form of the disease. They also told me they'd learnt from Joe, to help in their fight against it.

Read more about Joe